Childhood Cancer Survivors
Relationships With Friends
Cancer can affect friendships and new relationships in a variety of ways. While some friendships can be strengthened, cancer can disrupt relationships with friends and interfere with developing new friendships.
I was fortunate enough that the friendships I had going into treatment remained intact after treatment. I was relatively young, so the majority of my friends were family friends, but even the ones I met at school were very loyal to me. I was constantly visited by friends in the hospital, and they made my life much more manageable. If anything, I gained friends through the community of childhood cancer patients, and they have stayed my friends to this day. If someone left my side while I was going through treatment, I probably would not have wanted to be their friend anyways.
I have two friends from high school that I am still friends with. They were both there for a lot of my cancer journey, but one was there for me the most. She and I are best friends now. We live down the street from each other and have babies the same age. It’s such a special thing and I don’t know what I’d do without her.
I had plenty of friends before cancer treatment, but once I started my treatments and everyone saw me less, I felt invisible, almost like a ghost. Toward the end of treatment, I started making new friends online. These friends accepted me for me, not as some kid with cancer.
Since I was diagnosed so young, I didn’t have many friends before treatment. It was hard to make friends during and after treatment because I had limitations, but I am very grateful to my elementary school friend, Julia, for always being a friend and letting me be a normal kid.
Losing friends
Unfortunately, childhood cancer occurs at a time when friendships normally change rapidly. When the diagnosis occurs in elementary school, friendships often depend on what classroom you are assigned to or who shares your lunch table. If you are gone for an extended period of time, the group may welcome you when you return, or the groups may have shifted so that you are now on the outside. When cancer strikes middle-school-aged children, friendships often dissolve. Social groups are forming, peer pressure is at an all-time high, and compassion is often a temporary casualty of puberty. In many cases, high-school-aged adolescents are more mature and understanding, and friendships remain strong throughout treatment.
Friends disappear for many reasons—they can’t think of what to say or are afraid they will cry or say the wrong thing. Or they simply grow unfamiliar with the child who in the midst of a rapidly changing social scene misses huge chunks of time with friends. The friends may even think they can catch cancer. Many survivors have painful stories to tell of lost friendships.
Survivors also lose friends to cancer, and this is very difficult for children and their parents. During treatment, children and teens become extremely close to others going through treatment for cancer. And some of these children and teens die.
Losing some of my friends was very sad and disturbing. I still pray that they will have a good time in Heaven and I’m hopeful to see them there. I’m so glad to be home from all that cancer and I’m so glad I survived. It was a miracle for me from God and angels. Making some new friends is probably the best part.
I have had both good and bad experiences with friendships since having cancer. I have lost friends, which has been really hard. I think it’s hard for some people to understand what to do for or say to someone who is living with cancer, so they just leave. It’s hard not to take it as a punch to the face, but I have come to terms with it and now feel like maybe it was for the best.
Making new friends
Friendships in childhood are fluid; they depend on what class, school, neighborhood, church, or sports team you are involved with. Some survivors renegotiate or rekindle friendships and others make new friends during and after treatment.
Children being treated for cancer also miss key times for socialization and the development of social skills. Further, motivation to initiate new relationships or interact with others may be impacted due to physical issues such as fatigue or cognitive issues. Children whose parents take an active role in encouraging social interactions tend to do better socially. They can ask their child whom they like the most in their class at school and invite that child over to play or watch a movie. They can befriend parents of children with similar interests and invite the whole family over for dinner. Encouraging participation in school, music, church, or athletic activities exposes the child or teen survivor to new groups of peers.
Some survivors worry about making new friends because they don’t want to cause their friends pain in the event the cancer returns. Some survivors blend back into their peer group after treatment while others, even many years later, still feel different. Some survivors feel that they are rejected socially due to their cancer history, while others feel mature beyond their years because of what they have experienced. This can create differences in interests and value systems between survivors and their peers.
In hindsight, I realize there were some people who did not support me the way I expected. My oldest friend was at a different place in her life and was distant. She came into my life after treatment. Another good friend came to visit all-day, every-day and would just sit with me. He has since passed away, but it was very special knowing how much time he spent with me in the prime of his life. Those friends kept me going. They didn’t try to coddle but just stayed with me so I wasn’t alone. I didn’t really connect with other survivors. I just focused on getting through it.
Making friends that understand the unique experience of childhood cancer has been the highlight. During our daughter’s treatment before COVID, we connected with a lot more people, but even after COVID-policy restrictions, passing in the halls, we would swap numbers with families and made sure to give words of hope and encouragement to each other where possible.
When she was 5, we sent her to a childhood cancer camp. Although she did not have any recollection of the diagnosis and treatment of her neuroblastoma as a baby, she met and was able to talk with other kids who had extensive follow-up care and secondary side effects. We stay in contact with a lot of them through Facebook.
Late effects from cancer treatments can create additional barriers. Issues such as skin problems, thin or absent hair, very short height, or amputation may affect survivor’s engagement in social interactions. Additionally, sensory issues like hearing or vision loss, or disrupted social skills from neurological side effects, can impact the ability to interact with peers and make friends.
Cranial radiation at a young age or high-dose radiation to the brain at any age can affect a survivor’s social skills, including ability to attend to socially relevant information in conversations and interpret nonverbal behavior. Parents can help their children by getting them involved in social activities, role-playing social skills, enrolling them in social skills classes, and encouraging friendships with schoolmates. Peer support groups for teen and young adult survivors can provide a safe place to make friends, talk about feelings, and have fun.
Having other survivors as friends
You may find that you don’t get the support and understanding you need from your friends who do not have cancer. Perhaps you need people who are willing to listen without judgment when you talk about your cancer, or you may not like to talk about it at all. You may feel strongly that you need to live a healthy lifestyle to lessen the chances of late effects, and your friends may not respect your decision not to smoke or drink. For a variety of reasons, you may seek out or continue friendships made during treatment with other people who had childhood cancer. This shared experience can create deep and long-lasting bonds.
Dating
Close and intimate relationships are difficult at times for everyone, whether or not they had cancer. Some survivors have a more difficult time starting relationships than others. Whether you are merely looking for some fun or searching for a partner for life, you may find that your cancer history is an impediment. If you missed months or years of middle school or high school, re-entering the dating world can be especially complicated if your appearance is altered by baldness, weight gain, or scars. People you are attracted to may avoid you due to phobias about cancer or because of peer pressure. You may not feel ready to date after enduring the physical pain and social isolation that usually accompany cancer treatment. Or you may just pick up where you left off pre-cancer.
During my treatment, I met this guy that transported me to an MRI, and he asked me for my number so I gave it to him. We dated, but I constantly got in my own way in relationships. Being bald really messed up my head. I would ask him, “why do you want a sick person? I’m bald, and there are all these other women who don’t have this life.” I projected so many things onto him that weren’t actually his feelings. I would break up with him, then get back together, then break up again. Eventually he just said he couldn’t do it anymore. I ruined a lot of relationships with just being wild. Mentally, I was shoving everything down. My ruthlessness was a cover for my feelings, and I never dealt with them. I just didn’t care about my relationships, and when I did care it was too late. I didn’t fully have a connection to anyone.
Dating as a survivor is strange. Something I have struggled with when meeting new people, especially when dating, is how much or how little I should share with someone about my experience. Cancer has been a big part of my life and it is something I will always struggle with. Leaving it out of conversations, especially with a potential love interest, is a tricky thing to navigate. Opening up about it to some people is hard.
I disclosed my cancer through social media and through my family and friends because I felt too sad to share it in person, face-to-face. I shared the news pretty quickly after being diagnosed, but I never shared intimate details unless I felt safe enough to do so. With my boyfriend at the time, it was uncomfortable to share certain aspects because I was scared to be looked at differently, but he was so comforting and supportive. Sharing with anyone can be scary, but feeling supported enough to share with someone is really beautiful.
When I met my partner, I told her right away that I was a cancer survivor. Her response was very positive: “We will navigate and figure it out together.” Re-entering the dating scene has been complicated at times. I feel like I’m a burden due to my health issues, but then I remember that I have an amazing girlfriend who accepts me and will be by my side no matter what. Trying to keep that in mind is sometimes hard but I’m reminded every day that I’m loved.
Table of Contents
All Guides- Acknowledgements
- Contributors
- Foreword
- Preface
- 1. Survivorship
- 2. Emotions
- 3. Relationships
- 4. Navigating The System
- 5. Staying Healthy
- 6. Genetic Testing And Childhood Cancer
- 7. Diseases
- 8. Fatigue
- 9. Brain And Nerves
- 10. Hormone-Producing Glands
- 11. Eyes And Ears
- 12. Head And Neck
- 13. Heart And Blood Vessels
- 14. Lungs
- 15. Kidneys, Bladder, And Genitals
- 16. Liver, Stomach, And Intestines
- 17. Immune System
- 18. Muscles And Bones
- 19. Skin, Breasts, And Hair
- 20. Subsequent Malignancies
- About The Editors
