Childhood Cancer Survivors
Resources
Website: ccgresources.org
All resources and references mentioned in this book are available on the website and will be routinely reviewed and updated.
Alex’s Lemonade Stand Foundation
Website: www.alexslemonade.org
Search, childhood cancer families
Alex’s Lemonade Stand Foundation (ALSF) is changing the lives of children with cancer by funding impactful research, raising awareness, supporting families, and empowering everyone to help cure childhood cancer. ALSF offers many programs and tools to help families navigate the challenges of childhood cancer.
American Association of Sex Educators, Counselors, and Therapists (AASECT)
Website: www.aasect.org
AASECT is devoted to the promotion of sexual health by the development and advancement of the fields of sexual therapy, counseling, and education. AASECT’s mission is the advancement of the highest standards of professional practice for educators, counselors and therapists.
35 E Wacker Drive, Suite 850, Chicago, IL 60601
Ph: (202) 449-1099
Genetic Alliance
Website: https://geneticalliance.org/
Genetic Alliance a non-profit organization founded in 1986, is a leader in deploying high tech and high touch programs for individuals, families, and communities to transform health systems by being responsive to the real needs of people in their quest for health.
Genetic Information Nondiscrimination Act (GINA)
Website: www.ginahelp.org
The Genetic Information Nondiscrimination Act of 2008 (GINA) is a federal law that protects individuals from genetic discrimination in health insurance and employment. Genetic discrimination is the misuse of genetic information. This resource provides an introduction to GINA and its protections in health insurance and employment. It includes answers to common
questions and examples to help you learn.
Livestrong Fertility
Website: www.livestrong.org
Click on Resource Center, then download the Livestrong Guidebook, Search, late effects
National Cancer Institute
Website: www.cancer.gov
Scroll down to topics: Find Cancer type;
Select, childhood cancer & other general topics
National Council of Genetic Counselors
Website: www.nsgc.org
Click, Find a Genetic Counselor
RESOLVE: The National Fertility Association
Website: www.resolve.org
Provides access to care, advocacy, support and community, education, and awareness.
Table of Contents
All Guides- Acknowledgements
- Contributors
- Foreword
- Preface
- 1. Survivorship
- 2. Emotions
- 3. Relationships
- 4. Navigating The System
- 5. Staying Healthy
- 6. Genetic Testing And Childhood Cancer
- 7. Diseases
- 8. Fatigue
- 9. Brain And Nerves
- 10. Hormone-Producing Glands
- 11. Eyes And Ears
- 12. Head And Neck
- 13. Heart And Blood Vessels
- 14. Lungs
- 15. Kidneys, Bladder, And Genitals
- 16. Liver, Stomach, And Intestines
- 17. Immune System
- 18. Muscles And Bones
- 19. Skin, Breasts, And Hair
- 20. Subsequent Malignancies
- About The Editors
