Childhood Cancer Survivors
Resources
Website: ccgresources.org
All resources and references mentioned in this book are available on the website and will be routinely reviewed and updated.
Children’s Oncology Group. (V6, 2023). Long-Term Follow-Up Guidelines for Survivors of Childhood, Adolescent, and Young Adult Cancers
Website: www.survivorshipguidelines.org
Click under Health Links for: Endocrine System: central adrenal insufficiency, growth hormone deficiency, hyperprolactinemia, hypopituitarism, precocious puberty, thyroid cancer Reproductive System: female health issues, male health issues
Oncofertility Consortium
Website: https://oncofertility.msu.edu
The Oncofertility Consortium is an international, interdisciplinary initiative originally designed to explore the urgent unmet need associated with the reproductive future of cancer survivors and continues to explore the relationships between health, disease, survivorship, treatment, gender, and reproductive longevity.
Passport for Care, Survivor Care Plans by Children’s Oncology Group (V6, Nov 2023)
Website: https://cancersurvivor.passportforcare.org
Survivors and family can find online updated tailored long-term care plans which should be reviewed with their oncologist or health care provider.
Pediatric Endocrine Society
Website: https://pedsendo.org
Search for, growth hormone deficiency, patient resources,
Find a pediatric endocrinologist
Email: [email protected]
Table of Contents
All Guides- Acknowledgements
- Contributors
- Foreword
- Preface
- 1. Survivorship
- 2. Emotions
- 3. Relationships
- 4. Navigating The System
- 5. Staying Healthy
- 6. Genetic Testing And Childhood Cancer
- 7. Diseases
- 8. Fatigue
- 9. Brain And Nerves
- 10. Hormone-Producing Glands
- 11. Eyes And Ears
- 12. Head And Neck
- 13. Heart And Blood Vessels
- 14. Lungs
- 15. Kidneys, Bladder, And Genitals
- 16. Liver, Stomach, And Intestines
- 17. Immune System
- 18. Muscles And Bones
- 19. Skin, Breasts, And Hair
- 20. Subsequent Malignancies
- About The Editors
